How has the support impacted your family?
“I only wish you could see how much your help has impacted our whole family life. The adaptations have made daily living so much easier for us. For example, we don’t have to carry Dylan up and down the stairs to bed, we don’t have to carry him up to the car or out into the garden so he can play and we no longer have to lift him into the bath.”
What difference has the support made to Dylan?
“These things have made a huge difference to Dylan’s life. The changes have given him back his independence and allowed him to make choices about where he wants to go and what he wants to do. For example, Dylan can now choose if he wants to go and play in the garden.
“Dylan never used to play in his bedroom because he was always afraid that no one would hear him calling and come to help him up, but now he can play in his room knowing l am outside the door.
“It is however the things we take for granted that have had the biggest impact for Dylan including being able to brush his own teeth, shower himself and get out his own clothes. It brings a tear to my eye when l see his little smiley face. Amazing how it makes him feel grown up and in control.
“I am in contact with other families with boys who also have Duchenne muscular dystrophy and they are constantly struggling to get help.
“I look at Dylan and how happy and cheeky he is and feel truly blessed for the help we have received from the Trust, without it we would be under huge financial pressure and day-to-day living would be unbearable.”